In Search of a Cure: The Power of Patient Activism
Advances in health and medicine no longer rest entirely in the hands of scientists and clinicians. Patients and citizen activists are stepping up to influence research priorities, crowd-source data, and scour arcane medical literature in search of novel experimental approaches. Often, they are motivated by personal experiences, the refusal to accept that a disease lacks treatment or a cure, and the power of hope. Taking science into their own hands, these champions are engaging researchers and healthcare providers as allies and partnering with other advocates to push for new funding sources and speed the accumulation of knowledge.